Well where do I start? I’ve been reading posts on here for the past week and been going back and forth with myself on coming to grips with this diagnosis but it never fails, everytime I really sit back and think about it I can’t do anything about it but cry. I fell pretty hopeless right now. I was diagnosed a couple weeks ago by my new PCP but my problems began far earlier than that.
I am 22 years old, 5’4, 205 lbs, have a horrible immune system….and now on top of that I have this really cool beard and mustache, oh I forgot the sideburns, that like to creep in on me seemingly overnight. My weight problems started when I was about 9.
I started my period when I was 10 and didn’t see it again for 9 months, the pattern was never constant but I had maybe 4 periods a year. While I was in high school I just ignored it and figured it would sort itself out in the next few years. I eventually started BCPs when I was 19 and tried a few different varieties and they never really worked.
Some I would bleed all the time and others just made me really really mean. Over the years I would address my concerns to my doctors and well being young did nothing for me and they brushed me off and just said I ate too much. Since I was 18 I started having trouble with dairy so I just limited my intake knowing I would hate life later if I ate it.
By the time I got into my 20’s my stomach issues landed me in the hospital and there really began my battle with more doctors. I had my galbladder removed last year (galstones) and that was supposed to correct the problem, it didn’t. I was still constantly having abdominal pain and dealing with GI issues…oh ya and my periods were lame and late or completely absent.
In between all this I was maybe health for a couple weeks a month, I would get sick all the time and it would always turn into bronchitis, I would be so tired from just coughing all the time. So, finally I gave up and just stopped going to the doctor for a while. When a friend of mine finally convinced me to go to the doctor about my periods in early November I knew it wasn’t going to be good news.
After the labs losing my bloodwork and having to sneek away from work to go to the lab and have blood drawn…TWICE! I got a call from the nurse with the news on a Friday. “Black Friday” of all days. So my PCP refered me to the Gyno in their group….and WOW that was the most horrifying experience I could have ever asked for. Not only did I leave in tears but I left not knowing what he had even prescribed me.
All he really asked was if I wanted to get pregnant or not. From my understanding he went with BCPs and didnt even bother telling me which ones (he sent it straight to the pharmacy). This man was a complete jerk! I had done my research and understand a pretty good deal about the condition and as soon as I got emotional he told me I needed to see a psychiatrist, not that he recommended it but he INSISTED.
He insisted that I have an addiction to food and that I need to come to grips that I have a problem. I really wish I would have taken someone with me so they could have backed me up but I managed to make it through the appointment but remembered to ask him for a script for the cream to help with the facial hair and he just said no…lose weight and then maybe. I was so horrified I was in tears and still haven’t really recovered.
The second I left I called my PCP and asked for someone else but finally decided I just needed to change medical groups… so now I am diagnosed and not being treated…well i my attempt to get treatment I was treated like a liar and like I didn’t know my own body. I have since changed PCPs and medical groups (since HMO insurance is rediculous) I have to wait until January to actually seek treatment from my new doctor.
I’m bringing my mom with me this time. I’ll be reading more posts to see what kinds of treatments people are responding best to, I know we’re all different but thank you all for your kind words of inspiration and hope. We all need it.
Sorry that was so long… but if you read it thank you!
Want to connect with me? My name is MeliMel on the SoulCysters Message Board.