I have had PCOS since I was a teen but went undiagnosed tell I was in my early thirties.
I have suffered from almost every symptom to an etreem level. Irregular to no periods, painful cramps, cysts, back pain, jont pain, overweight, acne, headaches, hirsutisim (severe), hair loss (severe), fatigue, enlarged uterus, NAFTLD (liver conditon), and mood swings plus depression.
I have had two surgerys, one when I was 17 to remove a cyst on ovary and another two years ago to remove cyst on one ovary, removal of other, plus a dermoid cyst. I have felt, anger, shame, depression, and hoplessness. I have no luck from doctors partly due to the fact for years they did not know what was wrong and never took me seiously, then when I was diagnosed it was by a doctor who was amazing but she donated her time at a clinic for the uninsured.
Other doctors I have seen have been no help. I have recently got insurance, but so far my primary has done nothing except want to give me pain meds and depression medication which I said I did not want.
I have been in a lot of pain so I decided to try the pain medication but had such a bad reaction to it I thought death would be better (sorry for the drama) I have had people (family) tell me I was just trying to get attention and even that I was faking it, I feel so alone in all this and hope that through this ranting I will find someone I can relate to or even help.
Want to connect with me? My name is HeidiR on the SoulCysters Message Board.