My story – I started birth control pills when I was young to help with menstrual pain and acne.

When I was 20, I went off of the birth control pills to try and get pregnant. I had amenorrhea during the full year that we were trying to get pregnant. We had to move, so I went back on the birth control pills until things were more stable. Four years later, I went off of the bcps again to try and get pregnant.

I had several ultrasounds that showed polycystic ovaries. This as well as other symptoms led the doctors to diagnose me with Polycystic Ovarian Syndrome (PCOS). I had amenorrhea again for ten years, during which time I was given progesterone to bring on a period and then took fertility drugs to get pregnant.

I got pregnant several times, but lost them all at three months. I never did have children. Then when I was 35, I saw an endocrinologist who started me on Glucophage/Metformin. At this time, I started on bcps again for PCOS and acne.

I just had my fasting blood insulin done and it is very low now. This was a shock to me! Did I get misdiagnosed or is it possible for me to have decreased my insulin levels by eating a low glycemic index diet for two years, and on Metformin and bcps, as well? Now that my insulin levels are so low, does this mean I should stop taking Metformin? Or is Metformin contributing to lowering my insulin levels? I am so confused. Maybe my doctor isn’t well versed in PCOS? I am very sick with a type of Autonomic Dysfunction called Postural Orthostatic Tachycardia Syndrome (POTS) and it is very difficult for me to go to doctors appointments.

I usually have phone consults with my family doctor and my chronic disease doctor. I’m not so sure that a new doctor would do the same, because he/she can’t do a physical exam of me over the phone. I know I should follow my doctors advice, but does anyone know what I should do?

Want to connect with me? My name is Chatty Kathy on the SoulCysters Message Board.